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Aug 14, 2013, 06:39AM

Seizure Scare

And lessons on how health care works.

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Last Sunday night I had a seizure for the first time in my life, scaring the bejeezus out of my poor wife. I don't remember much of it myself, though I do recall telling the ambulance guys, "I'm going to throw up." They responded, calmly but with heartfelt sincerity, "Please don't."

Eventually I came to—sans vomit, thankfully—and there were tests and tests and sitting inside the MRI for about an hour and a half, listening to it make gigantic buzzing sequences like some sort of lengthy drone music concert. And everyone determined that there was nothing really wrong with me, except that my brain is slightly weird. People will occasionally have a random seizure in their sleep, it turns out. Who knew?

But I also got an interesting lesson in how our health care system works… and why it costs so damn much. Consider:

—There wasn't really any reason to bring me to the hospital. The ambulance crew had to know that most of these seizures resolve themselves in 15 or 30 minutes. If they'd just waited, I would have come to, and that would have been that. Then I could have gone in on an out-patient basis to check to see if I had that pesky brain tumor (which I didn't, thank goodness.)

—There wasn't any reason to keep me in the hospital overnight. I was perfectly fine; my friend of a friend who specializes in seizures says that treatment for first seizures is almost always to do nothing. I felt fine; there was no real reason to think I was going to have a second one. Why keep me in the hospital?

—If you were keeping me in the hospital, there certainly wasn't any reason to put me on bed rest or to say I couldn't take any food or water by mouth.

—If you were putting me on bed rest, I was only going to be on bed rest for like 12 hours. You didn't need to prescribe me blood thinner through my IV to prevent bed sores.

—Since most first seizures lead to nothing in particular, there isn't any reason to put me on medication that will alter my brain chemistry for an extended period.

In short, from the time I was picked up in the ambulance until I was handed the prescription slip, the medical/health complex was plying me with a series of interventions that were, for the most part, unnecessary. In some cases they seemed like they could be dangerous. Blood thinners are no joke; I'm sure I would have been fine if I'd let them put them in me, but you don't mess around with your circulatory system if you don't have to. Similarly, Keppra is supposed to have relatively few side effects—but still, there's a small chance of increased aggressiveness, or psychosis, not to mention dizziness. That all sounds potentially worse than the seizures I'm almost certainly not going to have. (And no, I'm not taking the Keppra either, no matter what the doctor says.)

The University of Chicago, where I went for treatment, is a teaching hospital, as my EEG tech said with a roll of her eyes as she admitted that no, despite the doctor's orders, there wasn't really any reason for me to get an EEG. Teaching hospitals are maybe more aggressive than an average cluster of medical professionals… but I think the general predilections are pretty obvious. The error all seems on the side of doing too much rather than too little, and unless you're willing to be unusually stubborn, you'll find yourself flat on your back with expensive blood thinner being flushed into your arm for no discernible reason (I had to refuse the blood thinner on two separate occasions.)

Sometimes tests are great. I’m thrilled to have those MRI pictures assuring that I don't in fact have a brain tumor. But there comes a point too where all the tests and treatments seem less like they're there to help you, and more like they're there just because they're there, and someone thought they were cool. We have this philosophy with medicine that says that more is better, and that it's safer to treat than not. That's certainly a way to run up impressive bills. But does it actually make you healthier? After a couple days in the hospital, I have to say I'm not convinced.

Discussion
  • You're one of the lucky ones, Noah, that's the good news. But you raise excellent points: in my experience, doctors want to rush patients through, and prescribe this or that (and often have bags of samples in their cupboard) and move on to the next one. I think the cult of the Doctor As God has lessened, but sick people are looking for real answers, and don't like being treated like cattle.

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  • Yes and similar things happen here in OZ. Bottom line in my case is I changed my doctor

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  • Good news Noah! I agree that a lot of these tests etc. are not necessary. I'd venture that there are valid legal liability issues that guide these tests as opposed to the randomness you suggest. My question, since you are a strong and consistent supporter of Obamacare, and you regularly suggest that capitalism is to blame for people having insufficient care; if you had a brain tumor or some other horrible reason for the seizure and they did not give/offer all of these tests and treatments, who/what would you blame for those tests not being given? In other words, you have often suggested that my calls for less care under Obamacare are uncaring and cruel, does this not make you just as careless and cruel as I; or, perhaps, you may see that my points are not driven by emotion but reasonable practicality? Or am I still unworthy of a response that does not contain ad hominem attacks?

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